Contributions
Abstract: EP1733
Type: Poster Sessions
Abstract Category: Therapy - Others
Background and aims: MS is a chronic, progressive, disabling and incurable disease that manifests frequently in young adults. The family life can be affected by the sum of disabilities, psychological and sexual problems, and last but not least the limitations that are imposed by the immunological therapy. This study evaluates the point of view of patients with multiple sclerosis (MS) regarding family life within the disease and the impact that the diagnosis had on it.
Methods: Our prospective study was conducted on the basis of a questionnaire of 20 questions in the period January -May 2018 on a sample of 496 patients, of fertile age, diagnosed with MS and following immunomodulatory therapy at the Neurology Clinic of Colentina Hospital, Bucharest.
Results: Our lot consisted of 496 patients of which 260 were females, 236 are under interferon treatment, 120 - glatiramer acetate, 40 - natalizumab and 100 - teriflunomide. In the women lot: 75% deny changes in their family life due to MS. 80% of those have the EDSS score < 3 points. The main elements that influence family life (from the women's point of view) are: gait disturbances (31%), sphincterian impairment (28%), depression or anxiety (20%), sexual impairment (11%) and family planning issues (10%). The male lot: 20% say their family life was affected by the disease. 90% of those have the EDSS score> 3 points. The divorce rate is 25% in the young lot (< 35 years) in spite of a low EDSS score. The main factors that lead to this decrease in the quality of life are: gait disturbances (40%), sphincterian disorders and sexual dynamic impairment (38%), depression (20%).
Conclusions: As to be expected, there is a good correlation between the EDSS score and the impact the disease has on family life. MS has a significant impact on families, influencing their wellbeing and quality of life, often creating psychological stress in each family member as well as on family functioning in generally.
Disclosure: I. A. Ionescu: nothing to disclosure
Abstract: EP1733
Type: Poster Sessions
Abstract Category: Therapy - Others
Background and aims: MS is a chronic, progressive, disabling and incurable disease that manifests frequently in young adults. The family life can be affected by the sum of disabilities, psychological and sexual problems, and last but not least the limitations that are imposed by the immunological therapy. This study evaluates the point of view of patients with multiple sclerosis (MS) regarding family life within the disease and the impact that the diagnosis had on it.
Methods: Our prospective study was conducted on the basis of a questionnaire of 20 questions in the period January -May 2018 on a sample of 496 patients, of fertile age, diagnosed with MS and following immunomodulatory therapy at the Neurology Clinic of Colentina Hospital, Bucharest.
Results: Our lot consisted of 496 patients of which 260 were females, 236 are under interferon treatment, 120 - glatiramer acetate, 40 - natalizumab and 100 - teriflunomide. In the women lot: 75% deny changes in their family life due to MS. 80% of those have the EDSS score < 3 points. The main elements that influence family life (from the women's point of view) are: gait disturbances (31%), sphincterian impairment (28%), depression or anxiety (20%), sexual impairment (11%) and family planning issues (10%). The male lot: 20% say their family life was affected by the disease. 90% of those have the EDSS score> 3 points. The divorce rate is 25% in the young lot (< 35 years) in spite of a low EDSS score. The main factors that lead to this decrease in the quality of life are: gait disturbances (40%), sphincterian disorders and sexual dynamic impairment (38%), depression (20%).
Conclusions: As to be expected, there is a good correlation between the EDSS score and the impact the disease has on family life. MS has a significant impact on families, influencing their wellbeing and quality of life, often creating psychological stress in each family member as well as on family functioning in generally.
Disclosure: I. A. Ionescu: nothing to disclosure