ECTRIMS eLearning

Spanish adaptation of the multiple sclerosis and vocational accommodations in multiple sclerosis patients
Author(s): ,
S. Vanotti
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA; INEBA - Neurociencies Institute of Buenos Aires, Buenos Aires, Argentina
,
N. Ciufia
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA
,
M. Eizaguirre
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA; INEBA - Neurociencies Institute of Buenos Aires, Buenos Aires, Argentina
,
A. Marinangeli
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA
,
C. Pita
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA
,
R. Alonso
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA
,
F. Caceres
Affiliations:
INEBA - Neurociencies Institute of Buenos Aires, Buenos Aires, Argentina
O. Garcea
Affiliations:
Multiple Sclerosis Clinic, University Centre of Neurology - J. M. Ramos Mejía Hospital, CABA
ECTRIMS Learn. Ciufia N. 10/10/18; 229389; EP1552
Dr. Natalia Ciufia
Dr. Natalia Ciufia
Contributions
Abstract

Abstract: EP1552

Type: Poster Sessions

Abstract Category: Pathology and pathogenesis of MS - Neuropsychology

The Buffalo Vocational Monitoring Survey (BVMS) is a tool to characterize work-challenged patients. Given the lack of an instrument in Spanish, we have proposed: to evaluate the adaptation of the Spanish version of the BVMS; to describe findings from this survey, to analyze the relationships between negative events and clinical and cognitive variables and to investigate the relationship between accommodations and clinical and cognitive variables.
61 MSpatients (93.2%RR-1.7%SP-5.1%PP) were included. 59%female; mean age: 38.89±10.38 years; education:14.18±2.57 years; EDSS:2.74±2.01; disease evolution 11.64±7.57; fatigue:4.33±3.17; depression:12.07±9.16. Outcomes measures: BVMS Survey; clinical outcomes; EDSS, BDI II & FatigueScale. Cognitive outcomes: BICAMS (SDMT-CVLT-BVMT-R); 7/24 Visuospatial Scale, PASAT2”-3” and Verbalfluency. Two factors were obtained: Clinical factor (EDSS-fatigue-depression-Cronbach´s α0.400) and Cognitive factor (SDMT-CVLT-BVMT-R-Cronbach´s α0.765). Psychometric evaluation included a professional translator, face and content validity procedure performed by an expert, a field test to verify the understanding of the contents and external criterion validity.
Regarding external criterion validity, between employees (dependent and self-employed) vs. unemployed (unemployed-retired) significant differences were obtained: Cognitive Factor (p=.022), SDMT (p=.040) , BVMT-R(p=.036), Pasat3 (p=.004), Pasat2 (p=.000) and Fatigue (p=.030), tendency in the Clinical factor (p=.051). Of 65.55% employee, 57.5% are in a dependency relationship, 32.5% are self-employed of informal works and 10% are self-employed composed of university professionals. 14.5% are unemployed of which 55.5% are due to disability. Regarding work problems, 13.5% refer decrease of scheduled work hours, 8.1% removal of job responsibilities, 5.4% asked to work additional hours and 2.7% formal discipline for a mistake. 12% of patients work additional hours per week and 22.5% miss days of work. 2 patients received harassment. Regarding job accommodations, flexible work hours, access refrigerator, memory aids and written job instructions are the most frequently used. Depression (p=.044) differentiate patients with and without negative events. Significant associations were found between accommodations and verbal memory (p=.335) and cognitive factor (p=.407).
This Spanish version is considered a new tool to monitor employment difficulties in Spanish-speaking MS patients.
Disclosure: Vanotti Sandra: has received reimbursement for developing educational presentations from Biogen Argentina and Novartis Argentina.
Ciufia Natalia: nothing to declare
Eizaguirre Barbara: nothing to declare
Marinangeli Aldana: nothing to declare
Pita Cecilia: nothing to declare
Alonso Ricardo: has received reimbursement for developing educational presentations, educational grants and travel stipends from Biogen, Genzyme, Merck, Novartis and Roche.
Caceres Fernando: received fees for consultancy and Advisory Board membership and fees travel, academic conferences and research project from Genzyme, Novartis, Merk, Ivax, Roche and Biogen Idec.
Garcea Orlando: has received reimbursement for developing educational presentations, educational and research grants, consultations fees and travel stipends from Biogen, Genzyme, Merck.

Abstract: EP1552

Type: Poster Sessions

Abstract Category: Pathology and pathogenesis of MS - Neuropsychology

The Buffalo Vocational Monitoring Survey (BVMS) is a tool to characterize work-challenged patients. Given the lack of an instrument in Spanish, we have proposed: to evaluate the adaptation of the Spanish version of the BVMS; to describe findings from this survey, to analyze the relationships between negative events and clinical and cognitive variables and to investigate the relationship between accommodations and clinical and cognitive variables.
61 MSpatients (93.2%RR-1.7%SP-5.1%PP) were included. 59%female; mean age: 38.89±10.38 years; education:14.18±2.57 years; EDSS:2.74±2.01; disease evolution 11.64±7.57; fatigue:4.33±3.17; depression:12.07±9.16. Outcomes measures: BVMS Survey; clinical outcomes; EDSS, BDI II & FatigueScale. Cognitive outcomes: BICAMS (SDMT-CVLT-BVMT-R); 7/24 Visuospatial Scale, PASAT2”-3” and Verbalfluency. Two factors were obtained: Clinical factor (EDSS-fatigue-depression-Cronbach´s α0.400) and Cognitive factor (SDMT-CVLT-BVMT-R-Cronbach´s α0.765). Psychometric evaluation included a professional translator, face and content validity procedure performed by an expert, a field test to verify the understanding of the contents and external criterion validity.
Regarding external criterion validity, between employees (dependent and self-employed) vs. unemployed (unemployed-retired) significant differences were obtained: Cognitive Factor (p=.022), SDMT (p=.040) , BVMT-R(p=.036), Pasat3 (p=.004), Pasat2 (p=.000) and Fatigue (p=.030), tendency in the Clinical factor (p=.051). Of 65.55% employee, 57.5% are in a dependency relationship, 32.5% are self-employed of informal works and 10% are self-employed composed of university professionals. 14.5% are unemployed of which 55.5% are due to disability. Regarding work problems, 13.5% refer decrease of scheduled work hours, 8.1% removal of job responsibilities, 5.4% asked to work additional hours and 2.7% formal discipline for a mistake. 12% of patients work additional hours per week and 22.5% miss days of work. 2 patients received harassment. Regarding job accommodations, flexible work hours, access refrigerator, memory aids and written job instructions are the most frequently used. Depression (p=.044) differentiate patients with and without negative events. Significant associations were found between accommodations and verbal memory (p=.335) and cognitive factor (p=.407).
This Spanish version is considered a new tool to monitor employment difficulties in Spanish-speaking MS patients.
Disclosure: Vanotti Sandra: has received reimbursement for developing educational presentations from Biogen Argentina and Novartis Argentina.
Ciufia Natalia: nothing to declare
Eizaguirre Barbara: nothing to declare
Marinangeli Aldana: nothing to declare
Pita Cecilia: nothing to declare
Alonso Ricardo: has received reimbursement for developing educational presentations, educational grants and travel stipends from Biogen, Genzyme, Merck, Novartis and Roche.
Caceres Fernando: received fees for consultancy and Advisory Board membership and fees travel, academic conferences and research project from Genzyme, Novartis, Merk, Ivax, Roche and Biogen Idec.
Garcea Orlando: has received reimbursement for developing educational presentations, educational and research grants, consultations fees and travel stipends from Biogen, Genzyme, Merck.

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