ECTRIMS eLearning

Analysis of the satisfaction of needs in multiple sclerosis
Author(s): ,
M. Ponzio
Affiliations:
Scientific Research Area, Italian Multiple Sclerosis Foundation
,
A. Tacchino
Affiliations:
Scientific Research Area, Italian Multiple Sclerosis Foundation
,
G. Brichetto
Affiliations:
Scientific Research Area, Italian Multiple Sclerosis Foundation; AISM Rehabilitation Centre Liguria, Italian Multiple Sclerosis Society (AISM), Genoa
,
C. Vaccaro
Affiliations:
Fondazione CENSIS, Rome
,
M.A. Battaglia
Affiliations:
Department of Life science, University of Siena, Siena, Italy
M. Messmer Uccelli
Affiliations:
Scientific Research Area, Italian Multiple Sclerosis Foundation
ECTRIMS Learn. Ponzio M. 10/10/18; 228243; P398
Michela Ponzio
Michela Ponzio
Contributions
Abstract

Abstract: P398

Type: Poster Sessions

Abstract Category: Clinical aspects of MS - Economic burden

Introduction: Measuring the satisfaction of needs is important for understanding the level of service coverage by public or private resources and is useful for service planning and for guiding optimization of care, especially considering an increase in multiple sclerosis (MS) prevalence.
Aim: To examine the satisfaction of health and social care-related needs, in relation to potential associated factors.
Methods: A total of 1,014 people with MS attending neurology outpatient clinics, rehabilitation units and MS Society branches participated in a cross-sectional study carried out in Italy during 2017. A questionnaire was specifically developed by a multi-disciplinary team. Separate logistic regression models (for health and social needs) were performed to determine the association between potential predictors and needs satisfaction.
Results: The study demonstrated significant gaps between perceived needs and service provision. The satisfaction of rehabilitation needs was more likely in subjects with the highest level of education (university degree vs. primary school) (OR=1.73, p=0.015). The geographic area of residence negatively influenced the satisfaction of needs related to psychological support (OR=0.55, p=0.043), technical aids (OR=0.15, p< 0.001), medications (OR=0.41, p=0.050) and psychological support (OR=0.55, p=0.043) (central and southern vs. northern Italy). Satisfying a need for technical aids was less probable for subjects currently employed vs. unemployed (OR=0.24, p=0.017). Transportation needs were less likely to be satisfied in subjects who were married (OR=0.43, p< 0.001). Satisfaction of financial support was less frequent for subjects with a higher level of disability (OR=2.56, p=0.031). Personal assistance was less likely to be satisfied in older subjects and those with a longer disease duration (OR=1.02, p=0.041 and OR=1.02, p=0.028, respectively). Career guidance was more frequently a met need for subjects who were currently employed (OR=3.34, p=0.013). Workplace adaptation was significantly less likely to be satisfied for subjects living in central vs. northern Italy (OR=0.15, p=0.018).
Conclusion: The type and relevance of health and social-related needs emphasize the necessity for an interdisciplinary approach to MS, essential for patient-centered care. The results of this study also provide the basis for advocacy priorities related to the rights of people with MS.
Disclosure: Ponzio M, Tacchino A, Brichetto G, Vaccaro C, Battaglia MA, and Messmer Uccelli M have no conflicts of interest to declare.

Abstract: P398

Type: Poster Sessions

Abstract Category: Clinical aspects of MS - Economic burden

Introduction: Measuring the satisfaction of needs is important for understanding the level of service coverage by public or private resources and is useful for service planning and for guiding optimization of care, especially considering an increase in multiple sclerosis (MS) prevalence.
Aim: To examine the satisfaction of health and social care-related needs, in relation to potential associated factors.
Methods: A total of 1,014 people with MS attending neurology outpatient clinics, rehabilitation units and MS Society branches participated in a cross-sectional study carried out in Italy during 2017. A questionnaire was specifically developed by a multi-disciplinary team. Separate logistic regression models (for health and social needs) were performed to determine the association between potential predictors and needs satisfaction.
Results: The study demonstrated significant gaps between perceived needs and service provision. The satisfaction of rehabilitation needs was more likely in subjects with the highest level of education (university degree vs. primary school) (OR=1.73, p=0.015). The geographic area of residence negatively influenced the satisfaction of needs related to psychological support (OR=0.55, p=0.043), technical aids (OR=0.15, p< 0.001), medications (OR=0.41, p=0.050) and psychological support (OR=0.55, p=0.043) (central and southern vs. northern Italy). Satisfying a need for technical aids was less probable for subjects currently employed vs. unemployed (OR=0.24, p=0.017). Transportation needs were less likely to be satisfied in subjects who were married (OR=0.43, p< 0.001). Satisfaction of financial support was less frequent for subjects with a higher level of disability (OR=2.56, p=0.031). Personal assistance was less likely to be satisfied in older subjects and those with a longer disease duration (OR=1.02, p=0.041 and OR=1.02, p=0.028, respectively). Career guidance was more frequently a met need for subjects who were currently employed (OR=3.34, p=0.013). Workplace adaptation was significantly less likely to be satisfied for subjects living in central vs. northern Italy (OR=0.15, p=0.018).
Conclusion: The type and relevance of health and social-related needs emphasize the necessity for an interdisciplinary approach to MS, essential for patient-centered care. The results of this study also provide the basis for advocacy priorities related to the rights of people with MS.
Disclosure: Ponzio M, Tacchino A, Brichetto G, Vaccaro C, Battaglia MA, and Messmer Uccelli M have no conflicts of interest to declare.

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