ECTRIMS eLearning

The 24 Hour Exercise Marathon for Multiple Sclerosis – to promote benefits of regular physical activity among patients and their supporters
ECTRIMS Learn. Novotna K. 10/25/17; 199866; EP1846
Klara Novotna
Klara Novotna
Contributions
Abstract

Abstract: EP1846

Type: ePoster

Abstract Category: Therapy - symptomatic - 34 Quality of life

Background: A positive effect of physical activity in people with multiple sclerosis (MS) has been proven in many studies. Most people with MS do not maintain sufficient level of physical aktivity, due to a variety of factors (such as a lack of motivation or knowleadge, fear, insufficient funds or a lack of support).
Methods: We would like to report our experience with an annual event that involves patients, caregivers as well as healthcare professionals. The aim of the event is to motivate patients with MS to remain physically active, to inform family members, sponsors and general public about importance and benefits of physical activity in MS and to raise funds for other physical therapy activities for MS patients organized throughout the year.
Results: The origin of this event is in Prague, Czech Republic and was inspired by MS patients who attended regular aerobic-resistance exercise and wanted to share their possitive experience with other MS patients. The First 24 hour Exercise Marathon for MS (MARS) took place in 2012 in Prague with 84 participants. This event was very succesfull and its reputation began spreading and encouraging other patients to get involved. The sixth Exercise Marathon for MS took place on March 3-4, 2017 and involved 3 244 participants, 31 sites across Europe including 7 international sites (France, Switzerland, Poland, Turkey, Slovakia) and 24 sites in the Czech Republic. Each site plans activities relevant to their preferences and possibilities, and always includes physical activity, such as circuit training, yoga, Tai-chi, nordic walking, therapeutic climbing etc. All physical activity is planned and supervised by physiotherapists specialised/experienced in in MS therapy. Exercise lessons are going on for 24 hours, during which teams consisting of patients, their friends, family members, physicians, nurses, and celebrities and other supporters také turns exercising. Educational activities and presentations take place in a meantime. Reports from participating sites are shared in real time on facebook and other media.
Conclusion: We would like to invite all MS centers and other interested groups from anywhere in the world to join the MARS in 2018 !
This event was supported and coordinated by Impuls Endowment Czech Republic.
Disclosure: KN received compensation for travel and speaker honoraria from Merck, Novartis and Teva
DH received compensation for travel, speaker honoraria and consultant fees from Biogen Idec, Novartis, Merck, Bayer, Sanofi Genzyme, Roche, and Teva, as well as support for research activities from Biogen Idec.
EKH received compensation for travel, speaker honoraria and consultant fees from Biogen Idec, Novartis, Merck, Bayer, Sanofi Genzyme, Roche, and Teva, as well as support for research activities from Biogen Idec.

Abstract: EP1846

Type: ePoster

Abstract Category: Therapy - symptomatic - 34 Quality of life

Background: A positive effect of physical activity in people with multiple sclerosis (MS) has been proven in many studies. Most people with MS do not maintain sufficient level of physical aktivity, due to a variety of factors (such as a lack of motivation or knowleadge, fear, insufficient funds or a lack of support).
Methods: We would like to report our experience with an annual event that involves patients, caregivers as well as healthcare professionals. The aim of the event is to motivate patients with MS to remain physically active, to inform family members, sponsors and general public about importance and benefits of physical activity in MS and to raise funds for other physical therapy activities for MS patients organized throughout the year.
Results: The origin of this event is in Prague, Czech Republic and was inspired by MS patients who attended regular aerobic-resistance exercise and wanted to share their possitive experience with other MS patients. The First 24 hour Exercise Marathon for MS (MARS) took place in 2012 in Prague with 84 participants. This event was very succesfull and its reputation began spreading and encouraging other patients to get involved. The sixth Exercise Marathon for MS took place on March 3-4, 2017 and involved 3 244 participants, 31 sites across Europe including 7 international sites (France, Switzerland, Poland, Turkey, Slovakia) and 24 sites in the Czech Republic. Each site plans activities relevant to their preferences and possibilities, and always includes physical activity, such as circuit training, yoga, Tai-chi, nordic walking, therapeutic climbing etc. All physical activity is planned and supervised by physiotherapists specialised/experienced in in MS therapy. Exercise lessons are going on for 24 hours, during which teams consisting of patients, their friends, family members, physicians, nurses, and celebrities and other supporters také turns exercising. Educational activities and presentations take place in a meantime. Reports from participating sites are shared in real time on facebook and other media.
Conclusion: We would like to invite all MS centers and other interested groups from anywhere in the world to join the MARS in 2018 !
This event was supported and coordinated by Impuls Endowment Czech Republic.
Disclosure: KN received compensation for travel and speaker honoraria from Merck, Novartis and Teva
DH received compensation for travel, speaker honoraria and consultant fees from Biogen Idec, Novartis, Merck, Bayer, Sanofi Genzyme, Roche, and Teva, as well as support for research activities from Biogen Idec.
EKH received compensation for travel, speaker honoraria and consultant fees from Biogen Idec, Novartis, Merck, Bayer, Sanofi Genzyme, Roche, and Teva, as well as support for research activities from Biogen Idec.

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