Contributions
Abstract: EP1337
Type: ePoster
Abstract Category: Clinical aspects of MS - 5 Epidemiology
Background: The inflammatory Central Nervous System disorders include multiple sclerosis (MS), optic neuromyelitis (NMO), acute disseminated encephalomyelitis (ADEM), and other demyelinating syndromes. Genetic and ambiental factors may be different across the Brazilian regions, given the different rates of European, African and Amerindian ancestry and enviromental factors in a continental country. However, no study has evaluated the possibility of an eletronic registry in Brazil to generate relevant epidemiological information on autoimmune neurological diseases.
Methods: This pilot study included 67 neurologists distributed across all regions from Brazil whom have been granted access during the first quarter of 2016 to the Neuroimmunology module from the Brazilian Registry for Neurological Disorders (BRA-REDONE) sponsored by the Brazilian Academy of Neurology.
Results: During a 3 months period (1Q2016), half of the neurologists logged-in to the system. The distribution of registered members in the different Brazilian regions was: North 5.9%, Midwest 11.8%; Southeast 47%, Federal District 8.8%, and South 26.5%. From these, 25% (8/34) have successfully included more than 830 patients into the database.
Conclusions: In a very short period of time, we registered a large number of patients from all regions using a computer-based tool, indicating the feasibility and utility of such databases for large countries such as Brazil. These early results may provide data to establish incidence and prevalence across the Brazil regions with potential use in the promotion of public health policies.
Disclosure: Doralina G. Brum: Nothing to disclose
Abstract: EP1337
Type: ePoster
Abstract Category: Clinical aspects of MS - 5 Epidemiology
Background: The inflammatory Central Nervous System disorders include multiple sclerosis (MS), optic neuromyelitis (NMO), acute disseminated encephalomyelitis (ADEM), and other demyelinating syndromes. Genetic and ambiental factors may be different across the Brazilian regions, given the different rates of European, African and Amerindian ancestry and enviromental factors in a continental country. However, no study has evaluated the possibility of an eletronic registry in Brazil to generate relevant epidemiological information on autoimmune neurological diseases.
Methods: This pilot study included 67 neurologists distributed across all regions from Brazil whom have been granted access during the first quarter of 2016 to the Neuroimmunology module from the Brazilian Registry for Neurological Disorders (BRA-REDONE) sponsored by the Brazilian Academy of Neurology.
Results: During a 3 months period (1Q2016), half of the neurologists logged-in to the system. The distribution of registered members in the different Brazilian regions was: North 5.9%, Midwest 11.8%; Southeast 47%, Federal District 8.8%, and South 26.5%. From these, 25% (8/34) have successfully included more than 830 patients into the database.
Conclusions: In a very short period of time, we registered a large number of patients from all regions using a computer-based tool, indicating the feasibility and utility of such databases for large countries such as Brazil. These early results may provide data to establish incidence and prevalence across the Brazil regions with potential use in the promotion of public health policies.
Disclosure: Doralina G. Brum: Nothing to disclose