Contributions
Abstract: EP1567
Type: ePoster
Abstract Category: Therapy - symptomatic - Quality of life
Background: New aggressive treatments promise improvement of results in the treatment of multiple sclerosis (MS), however with high risk of serious complications.
Objectives: In this study we analyzed patients" acceptance for risks connected with the MS treatment.
Methods: The study was designed as a prospective non anonymous online questionnaire. Responders were asked about the definition of the “cure” for MS and crucial goals in the treatment.
Results: One hundred eighty patients filled in the questionnaire (129 women and 51 men), the mean age was 33 years (SD=10.29). The MS forms were as follows: relapsing-remitting (65%), secondary progressive (14%), primary progressive (10%) and other (11%); with mean EDSS score of 3 points (SD=2.6). For 50% of the patients relief of symptoms such as fatigue (72%), paresis (66%), balance disorders (65%) was synonymous with “cure”. The patients with faster progression of the disease were likely to accept risky “curative” treatments - with average 68% accepted mortality risk (p=0.003). Over 81% of patients accepted mortality rates over 1% for the treatment that achieves self-defined cure.
Conclusion: The study shows that the MS patients are likely to accept even very risky treatments as long as they promise patient defined “cure”.
Disclosure: The Authors declare that there is no conflict of interest.
Funding sources: None
Abstract: EP1567
Type: ePoster
Abstract Category: Therapy - symptomatic - Quality of life
Background: New aggressive treatments promise improvement of results in the treatment of multiple sclerosis (MS), however with high risk of serious complications.
Objectives: In this study we analyzed patients" acceptance for risks connected with the MS treatment.
Methods: The study was designed as a prospective non anonymous online questionnaire. Responders were asked about the definition of the “cure” for MS and crucial goals in the treatment.
Results: One hundred eighty patients filled in the questionnaire (129 women and 51 men), the mean age was 33 years (SD=10.29). The MS forms were as follows: relapsing-remitting (65%), secondary progressive (14%), primary progressive (10%) and other (11%); with mean EDSS score of 3 points (SD=2.6). For 50% of the patients relief of symptoms such as fatigue (72%), paresis (66%), balance disorders (65%) was synonymous with “cure”. The patients with faster progression of the disease were likely to accept risky “curative” treatments - with average 68% accepted mortality risk (p=0.003). Over 81% of patients accepted mortality rates over 1% for the treatment that achieves self-defined cure.
Conclusion: The study shows that the MS patients are likely to accept even very risky treatments as long as they promise patient defined “cure”.
Disclosure: The Authors declare that there is no conflict of interest.
Funding sources: None