Contributions
Abstract: EP1408
Type: ePoster
Abstract Category: Clinical aspects of MS - Economic burden
Background: In April 2016, the UK Government devolved £6 billion of health and social care funding to the Greater Manchester area. This autonomy represents an unprecedented opportunity to shape integrated MS services to a catchment population of 2.8 million at a regional level.
Objective: To define the characteristics of the caseload of people with MS (PwMS) managed by the Greater Manchester Neurosciences Centre (GMNC), based at Salford Royal NHS Trust, to enable informed discussions regarding service improvements for PwMS, with regional commissioners of health and social care.
Methods: PwMS who accessed the GMNC MS service between April 2014 and April 2015 were identified and baseline demographics were collected as part of the MS Trust Generating Evidence in Multiple Sclerosis Study (GEMSS). Further data, such as Clinical Commissioning Group, was derived from this cohort through the Electronic Patient Record.
Results: 3691 PwMS were identified, representing an annual service growth of 6%. 71% were female, peak age 41-50. Fifty-five percent had relapsing-remitting MS, 31% secondary progressive MS and 7% primary progressive MS. Forty-three percent of patients had an EDSS of ≤5.5, 39% 6.0 to 7.5 and 19% 8.0 or above. Each whole time equivalent specialist nurse has a caseload of 505 patients. Eleven hundred and four (30%) of patients were receiving disease modifying treatments.
Patients came from a total of 44 Clinical Commissioning Groups and 3% of patients were out of catchment area.
Conclusion: This dataset, which is being regularly updated, including with healthcare utilisation data, will facilitate discussions with commissioners at a regional level to improve services for PwMS.
Disclosure: The original dataset was generated from the UK MS Trust´s Generating Evidence in MS Study (GEMSS). No external sources of funding contributed to this work.
Lusher W, Bradford A, Vernon K, Jackson F, Parkes W, Power W, Dunbar D, Harrison L, Allen C, Carter Gill, Pace A, Mihalova T, Sharaf S, Talbot P, Rog D: nothing to disclose relating to this work.
Abstract: EP1408
Type: ePoster
Abstract Category: Clinical aspects of MS - Economic burden
Background: In April 2016, the UK Government devolved £6 billion of health and social care funding to the Greater Manchester area. This autonomy represents an unprecedented opportunity to shape integrated MS services to a catchment population of 2.8 million at a regional level.
Objective: To define the characteristics of the caseload of people with MS (PwMS) managed by the Greater Manchester Neurosciences Centre (GMNC), based at Salford Royal NHS Trust, to enable informed discussions regarding service improvements for PwMS, with regional commissioners of health and social care.
Methods: PwMS who accessed the GMNC MS service between April 2014 and April 2015 were identified and baseline demographics were collected as part of the MS Trust Generating Evidence in Multiple Sclerosis Study (GEMSS). Further data, such as Clinical Commissioning Group, was derived from this cohort through the Electronic Patient Record.
Results: 3691 PwMS were identified, representing an annual service growth of 6%. 71% were female, peak age 41-50. Fifty-five percent had relapsing-remitting MS, 31% secondary progressive MS and 7% primary progressive MS. Forty-three percent of patients had an EDSS of ≤5.5, 39% 6.0 to 7.5 and 19% 8.0 or above. Each whole time equivalent specialist nurse has a caseload of 505 patients. Eleven hundred and four (30%) of patients were receiving disease modifying treatments.
Patients came from a total of 44 Clinical Commissioning Groups and 3% of patients were out of catchment area.
Conclusion: This dataset, which is being regularly updated, including with healthcare utilisation data, will facilitate discussions with commissioners at a regional level to improve services for PwMS.
Disclosure: The original dataset was generated from the UK MS Trust´s Generating Evidence in MS Study (GEMSS). No external sources of funding contributed to this work.
Lusher W, Bradford A, Vernon K, Jackson F, Parkes W, Power W, Dunbar D, Harrison L, Allen C, Carter Gill, Pace A, Mihalova T, Sharaf S, Talbot P, Rog D: nothing to disclose relating to this work.